Your last six weeks
Decent into madness
Prisoner of your own mind
Conspiracy of loved ones
Set to take you down
Fighting just to breathe
As you stared into the static
Mad bombers in Boston
Fueled your paranoia
While I tried to diffuse
Your bomb
Of oxygen and cigarettes
One bullet was all you needed
Maybe two…..
Helpless futile attempts
To excise the disease
Wasting, wasting
-ssssssssssssssssssssss
I wrote this a few weeks ago and debated posting it. Today, one of my favorite bloggers, Behind the White Coat posted Cycling. If you don’t already follow her you should check her out. She always has insightful stories and a unique point of view -not to mention beautiful photographs that she pairs perfectly with her writing. The piece Cycling showed what doctors can do to make a positive difference in family health. I only wish my father had had such a conscientious doctor. His doctor was too worried about potential lawsuits to do the right thing. He would not recommend an Alzheimers ward. He wanted my eighty year old mom to handle my dad who was in a rapid state of decline. This forced me to choose between my dad and my mom when my dad became violent and my mom had to move out for her safety. Eventually I went before a judge to get him committed to a care facility. His last few weeks were spent in a state of confusion and hate for the family that actually loved him so much. While Alzheimers is a difficult disease for a family to handle even under the best circumstances, it would have been a lot easier if the healthcare professionals had been supportive instead of antipathetic.
August 9, 2015 at 7:14 pm
Thank you so much for the mention and your kind words! ((Hugs))
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August 9, 2015 at 7:20 pm
What you do is special and important.
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August 9, 2015 at 7:54 pm
My own stint as an Alzheimer’s caregiver was *relatively* easy, and the medical professionals involved really were professionals. The “doctor” who expected an 80-year old woman to care for a violent and paranoid sufferer was worse than a quack.
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August 9, 2015 at 7:58 pm
Agreed
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August 9, 2015 at 8:37 pm
Raw. Potent. Poignant.
Powerful.
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August 9, 2015 at 9:00 pm
I am so sorry about this experience; I don’t think the medical system are ready for the baby boomers where there will be lots of old people. Canada is not ready and that concerns me. Families are devastated by the care of an elderly parent. Your father was lucky to have you.
Louise
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August 9, 2015 at 9:00 pm
Thank you. It was a tough time.
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August 9, 2015 at 9:16 pm
Yes. It must have been. I can only imagine. I can only offer my compassion.
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August 9, 2015 at 9:31 pm
I agree with you about the system not being ready for the baby boomers. I am considered in that demographic but I am what I call the tail pipe of the baby boomers. Right now we are in sandwich mode. Young adult children and elderly moms needing our help. I know from reading your pieces that you had a tough time of it with your parents. I am so sorry.
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August 9, 2015 at 9:41 pm
Very well put. I do think those of us who are older and experienced need to help our younger people . One of my followers is 13 years old. I feel a sense of responsibility to hearing their voice so they grow up to be healthy adults.
I want you to know how much I appreciate you and your presence: it helps me, thanks.
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August 9, 2015 at 9:48 pm
Thank you!
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August 10, 2015 at 3:15 am
Thanks for that thoughtful piece. You’re quite right that society as a whole is still grappling to come to terms with the problem, and it’s compounded by a certain silence. The predominant culture being youthful and aspirational, the endgame isn’t one people like to contemplate, so contributions like this are valuable.
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August 10, 2015 at 5:15 am
Thank you.
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August 10, 2015 at 2:44 pm
A sad downward spiral. And you are so right there are units that make it safe and even enjoyable for the Alzheimer’s patient.
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August 10, 2015 at 9:06 pm
Sad but unfortunately happening way to often. One of my big fears is alzheimers. Take care.
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August 11, 2015 at 12:12 am
Oh dear. I’m sure it was. I have an inkling of what you went through, from my mother’s heart issues, but, really, not even close. So my heart goes out to you.
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August 11, 2015 at 5:04 am
Thank you
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August 15, 2015 at 7:30 pm
Too bad your dad’s doctor feared more instead of cared more, DE. The doc dodged lawsuits instead of making sure the right thing happened for patients and loved ones. Sorry, all around.
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